Education

Our Voices Blog


Category : CBCN in Action

Putting patients’ first - Moving research into the real world

This year I was honoured to participate as a patient representative on the steering committee of the Canadian Cancer Research Conference hosted by the Canadian Cancer Research Alliance at the beginning of November. 

Wanna know where your money goes?

This holiday season consider adding CBCN to your list for charitable giving! Here’s what you’ll be supporting.

CBCN receives SPARC grant for mBC Financial Resources Navigation tool

CBCN is excited to announce that we’ve been awarded an international SPARC grant, Seeding Progress and Resources for the Cancer Community: Metastatic Breast Cancer Challenge, to develop a mBC Financial Resources Navigation Tool.

Shades of Grey - Patient Advocacy with Integrity

Increasingly the not-for-profit advocacy world has been clouded with criticism of industry funding. Many critics believe that any organization that receives funding from the pharmaceutical industry is automatically biased, but this ignores the great pains that health charities often go through to remain unbiased, ethical and credible. And it certainly does not reflect the patient-centric approach that CBCN takes.

“Nothing about us, without us”- Key lessons learnt from the Breast Cancer Patient Group Forum

How valuable is patient input to decision-makers and how can we work to make sure that the patient voice is really being heard? These are just some of the important questions that I and many others gathered to discuss at the annual Breast Cancer Patient Group Forum in Vienna, Austria.

No one breast cancer story is the same. Help us to understand yours.

Recently, I celebrated my 5-year anniversary at CBCN. The thing that has become the most evident to me over these 5 years is that every single person’s experience with breast cancer is unique. Just when I think I’ve heard every story, I meet or hear from someone new and am reminded that every person diagnosed with breast cancer in this country has their own set of experiences and challenges to overcome while dealing with their diagnosis. 

What I learned from women around the world living with metastatic breast cancer

This June I had the opportunity to attend the Europa Donna Metastatic Breast Cancer Advocacy Conference in Italy. The chair of our board, Cathy, was asked to speak and I was happy to join her to share with the group the advocacy that CBCN has been doing in Canada. While most of the participants that attended were representing various organizations, it was interesting learning that many of them were also women who were living with metastatic breast cancer.

Discussing the gaps in cancer drug coverage at key Canadian Conference

I had the privilege to attend the Canadian Partnership Against Cancer’s (CPAC) Conference on Optimal Approaches to Cancer Care in Canada. This was the first time that CPAC hosted this conference.  Its purpose was to explore 4 key themes to cancer control: initiatives in quality care, economics of high-quality care, improving the quality of cancer diagnosis, and overcoming inertia in the cancer system (why don’t we do what we know works?). 

What's the CADTH Symposium & why is it important?

On April 24th and 25th I was pleased to attend the 2017 CADTH Symposium in Ottawa. "Value in Health Care" was the conference aim, specifically how to define it, how to measure it and how to include it in our health system. But what is CADTH?