Man, I’d be rich if I was a scientist and discovered a way to prevent a breast cancer recurrence. But I’m not. Instead, I’m a normal woman who is often riddled with worry that I’ll one day have one. I’m not thinking about this 24/7, but I am thinking about a potential recurrence often enough that the thought is a constant in my life, lurking in the back of my brain. It’s normal, I had breast cancer, I could have it again. These nagging thoughts always seem to resurface and escalate right before I’m scheduled to see my doctors for a mammogram or ultra-sound screening. And so, because I’ve been counting down the days until my next breast cancer-screening appointment, I’m having them now.

In today’s post, we provide the questions that were sent in and asked during the live session of our Questions and Experts session held on September 19, 2023. In this session, Dr. Tina Hsu, MD, FRCPC answers all your questions about navigating a breast cancer diagnosis at an older age. In the parentheses, you’ll find the timestamp of where to find the question in the on-demand video.

Colleen Packer of Calgary felt a wide range of emotions when she was diagnosed with metastatic lobular breast cancer in 2019: “Shock. Frustration. Fear. Grief. I sobbed. Initially in that first year, it had a really huge impact. Now it has become more routine. Now I feel a lot more in control. It’s a strange mix of feelings to have. It’s both/and. It’s possible to feel happy and sad, angry, grateful, afraid, and confident all at the same time. All those feelings are valid, and you need to provide space for all those feelings because they’re all very much a part of the experience.

Haven is a patient support program by Sentrex that specializes in oncology; this means our all our staff have oncology expertise. In fact, all Haven’s staff have joined Sentrex from hospital cancer centres. Haven offers certain patient support such as insurance reimbursement assistance and pharmacy services.

Because I’m a born and raised Canadian, I just assumed I would have access to all sorts of free testing and screening when I found the hard, pea-sized lump in my right armpit. Not so much. Here’s how my breast cancer-screening steps went.

My name is Cortney Drover, and my identical twin sisters’ name is Connie Claeys. We are 37-year-old females living with Stage IV metastatic breast cancer, and being identical twins, we both carry the BRCA2 gene. Here is our story.

Caregivers are often told, “You need to take care of yourself if you are taking care of others.” It’s so easy to say but not so easy to do. I wrote the above sentence in June 2021 for a future memoir. I had no way of knowing that 15 months later I would be writing about a new challenge. Before I can share my breast cancer story, I need to set the scene.

A breast cancer diagnosis can leave you feeling winded, like you’ve been socked in the stomach and can’t breathe, or even think for that matter. That’s how I felt. I had no emotion, no tears and no anger when I first heard the words “you have breast cancer.” My mind and body simply froze and everything around me, including my mind, went hazy. I attribute this now to shock, which, in my opinion, is a fairly reasonable reaction to receiving such life-changing news. And while the haziness eventually wore off, the surrealness of my new reality remained overwhelming.

If you found out that you had a life-limiting illness, would you tell your colleagues at work? If you did, would they think you’re less capable of doing your job? That was the dilemma that Colleen Packer faced when she was diagnosed with metastatic breast cancer in 2019.

It’s safe to say that most of us believe, kind of like the-sky-is-blue believe, that the past, present, and future are the logical chronology of time. Even mathematical equations, which I am terrible at, define time as the measure of the duration that exists between each sequence of these events. So how come when it comes to breast cancer, time is so fucked up? It would be so much more manageable if we, individuals diagnosed with cancer, could just live in the present.

In May 2021, The Dr. Susan Love Foundation, one of the top breast cancer research organizations in the United States, announced that every year, August 18^th would be known as World Breast Cancer Research Day. The 18^th was chosen as a representation of the 1 in 8 women who will be diagnosed with breast cancer during their lifetime. The Foundation also wanted the day to be apart from Breast Cancer Awareness month, which is October, as awareness, patient support, and research need to be highlighted throughout the year. Dr. Susan Love, founder of the Dr. Susan Love Foundation, recently passed away from recurrent leukemia on July 2, 2023. She was a pioneering breast cancer researcher, advocate, surgeon, and fierce critic of the medical field’s historically patriarchal system and paternalistic treatment of women.

Neutropenia is a condition caused by lower-than-normal amounts of neutrophils, a type of white blood cell. Neutrophils fight infection in the body by killing harmful bacteria and other blood-borne pathogens. The most common cause of neutropenia during breast cancer treatment is chemotherapy, though other types of cancer medicine can also cause it. Chemotherapy can cause neutropenia because it kills rapidly dividing cells, such as cancer cells. It can also affect other quickly dividing cells in our bodies, including white blood cells, red blood cells, and platelets. When chemotherapy destroys too many white blood cells, neutropenia occurs.

Trapped beneath my bra, cotton t-shirt and cropped pants, pools of sweat mingled with dust and grime before being absorbed into my clothes and skin. Despite the cold showers I soaped up under twice daily, one before heading out into the wee hours of the morning and another again in the dark of night before crawling under a thin sheet to sleep, the dirty damage was done. A skin fungus had formed. I had ringworm.

The thought of dating after a breast cancer diagnosis and treatment might make you nervous or excited. It may also reawaken or increase emotional responses you had at diagnosis or during treatment. If you have anxiety or depression, these responses can cause you to focus on or magnify negative thoughts about your prospects for dating. If you want to date but feel reluctant to start, you might be having difficulty imagining yourself meeting new people and having fun.

The negative financial impacts after a breast cancer diagnosis can be strenuous, especially for those already in a precarious financial situation prior to being diagnosed. Already having to deal with the overwhelming feeling of being diagnosed with breast cancer, patients should be able to focus on their health and not have the added stress of dealing with their financial situation. That is why we created FinancialNavigator, an online database of various financial assistance programs across Canada. 

The 2023 American Society of Clinical Oncology (ASCO) annual meeting was held from June 2 to 6. CBCN was pleased to be able to attend and participate in the many interesting and groundbreaking research that was shared at ASCO this year. Below, we present a few highlights and takeaways from this year’s conference.

When I was diagnosed with breast cancer, I had no idea how hard it would be. Not the surgery, I’ve had major surgery before, so I wasn’t afraid of being put under anesthetic and being operated on. Mentally, I was focused on one sole factor, survival, so my head space at the time was very clear and didn’t allow for any other emotions or thoughts. Reality, fear, anxiety, hope…that all came later.

June 21, 2023 is National Indigenous Peoples Day. This is a day for all Canadians to recognize and celebrate the unique heritage, diverse cultures and contributions of First Nations, Inuit, and Métis peoples. This is also a day that should call to attention the various issues that Indigenous peoples continue to face, including racism, colonialism, and disparate health outcomes from much of the rest of Canada. Broad determinates of health like geography, accessibility and availability of services, and cultural differences contribute to the challenges faced by Indigenous peoples.

A few years ago, a friend shared a story about the first trimester of her pregnancy. She was thrilled to be pregnant, but at the time, kept her pregnancy under wraps as she hadn’t passed the three-month safety zone. She was also sick as a dog, overwhelmed with intense nausea and fatigue, that heightened during her twice-daily, 25-minute subway commute to and from work. Despite looking green-ish, sweaty, unstable on her feet and gripping whatever pole or hand railing was available, not once in 90 days did anyone sitting on the subway offer my friend their seat. She’d felt invisible.

Depending on your situation, your financial needs can come in different forms, from needing money to pay for rent, to needing help with paying for treatments, to requiring help with parking costs when you go for cancer treatments. To highlight the various types of programs listed in FinancialNavigator, we have put together this blogpost series. All the highlighted programs below are available to individuals in all provinces and territories, unless otherwise noted. This is not an exhaustive list all of programs in these categories but is meant to highlight the types of financial help that can be found in our FinancialNavigator database. Visit FinancialNavigator for all available financial assistance programs.