Education

Our Voices Blog


Category : Stories

Nerve damage is a little-known side effect of radiation

About 10 years ago, Charlotte Pennell was pruning bushes in her garden in Winnipeg. One branch seemed especially tough to cut. Then she looked down and saw that she was cutting her finger. She was horrified that she had so little feeling in her hand.

The flying trapeze artist: Hanging in thin air, waiting for the rest of my life to begin

For Jenn Abbott, finishing treatment for breast cancer is like a flying trapeze.  Having received her “NED” (no evidence of disease), she is in mid-air, no longer holding on to the bar that represents the medical team that saved her life, while at the same time, not yet catching the second bar that represents the rest of her life after cancer.  She is in limbo, facing post-traumatic stress disorder brought on by her cancer treatment which included five surgeries and a severe adverse reaction to chemotherapy that meant she had to stay in the hospital for two weeks. She feels PTSD after cancer treatment is real.

Surviving breast cancer and living with lymphedema

January 4, 2010, I became a fly on the wall.  I was at my surgeon’s getting results from my biopsy.  It was supposed to be a quick appointment as the initial needle test of fluid prior to the biopsy was negative for cancer, or so we thought.  I remember hearing the doctor telling me “unfortunately it was cancer….” I felt like I was having an out of body experience. I was there but literally watching over my body and the doctor from a distance.  My world suddenly changed both physically and mentally.

Living like I’m dying

I’m from Ottawa. I was diagnosed de novo in March 2011 with metastatic breast cancer and metastasis to the bone. I am 53 years old. I am a mother, daughter, sister, artist, lesbian, atheist, and gardener.

Medical marijuana gives a metastatic patient relief from pain, hot flashes, and sleeplessness

Cindy Blondeau of Moosomin, Saskatchewan is pleased that the federal government is legalizing marijuana.  For this metastatic breast cancer patient, pure CBD oil from this plant works better than any other painkillers that she has tried.

Rethinking the slippery slope: resilience, metastatic breast cancer, and me

“Go UP the stairs.  Slide DOWN the slide.  No, Sweetie.  Go UP the STAIRS.”  She could barely walk, but she was climbing up the slide.  Then, and now.  Spend ten minutes at a playground, and the appeal of climbing up the face of the slide is undeniable.  I am acutely aware of the dangers of falling off the slide, the risks of children bumping into each other. I vaguely remember falling off a slide, decades ago--one of the old, tall ones—before playgrounds had soft surfaces.  I like to see everyone going in the same direction.  Up the stairs.  Down the slide.  Nice, orderly, predictable, and safe.

Fear of recurrence runs high for triple negative breast cancer patient

Montreal resident Kelina feels like a “sitting duck” because although researchers are working hard to find treatments for triple negative breast cancer, there are no targeted therapies available to this cancer, which was diagnosed in December 2015. 

One out of Nine: How this art exhibit tells my story, and has helped me heal

At the age of 46, I was diagnosed with stage two/grade three multifocal, invasive lobular and ductal breast cancer. I had found the lump myself after a year of constant infected cysts in my breast. I had been told I had very dense breasts, which is part of the reason the cancer was not visible on a mammogram. I had it confirmed by biopsy and had a right mastectomy followed by four rounds of chemotherapy. Six months later, I chose to have my left breast removed and began reconstruction.

A Running Thread

It’s good to set challenging goals.

I ran my first marathon the year I turned 50, and completed another two years later.  I loved establishing training goals that would force me to push myself physically, and feeling healthy  and strong as the result of running regularly.  In November 2015, I decided on a new goal:  to run another marathon in the fall of 2016, and complete it with a time fast enough to qualify for the Boston Marathon.

Is this the drug funding we deserve?

When I started getting sick in the late summer of 2011, I was pretty sure I knew what it was. I thought my endometriosis was "acting up." Then my symptoms changed and a Google search convinced me I needed my gall bladder removed. I exaggerate, but the point is that while my disparate symptoms piled up, I was sure there was a simple explanation. Cancer never entered my mind, even when my gynaecologist found a lump in my breast I hadn't noticed.

How I regained control of my life when breast cancer made me feel like I had lost it

My journey began on New Year’s Eve 2015, when I noticed a red mark on my right breast.  It wasn’t long before my stomach dropped and I felt my face flush while my throat did that swallowing action reserved for moments just like this.

Overcoming the lasting side effects of breast cancer

Wendie Hayes of Stoney Creek Mountain, Ontario was diagnosed in 2011 with triple negative metaplastic phyllodes breast cancer at the age of 55 after she discovered a lump in her left breast.  Her cancer is a rare type, affecting less than one percent of breast cancer patients, so it took some time to get the right diagnosis. 

Remembering Laurie Kingston

It seems impossible to try to capture the essence of who someone is, was, through just words. Because there are no words that really do justice to honour a person like Laurie Kingston and how her life touched so many people, people she didn’t even know. It is with great sadness that we mourn the loss of Laurie, one of CBCN’s board members, who passed away on January 8, 2018.

What made a difference when managing my treatment side effects

I was not prepared for the number of decisions regarding treatment that needed to be made from cancer diagnosis to treatment options.  It was both exhausting and overwhelming – how does one make sound life-changing decisions when there are so many options and choices? I learned to trust myself and be my own advocate as I navigated through the many decision points.

Metastatic patient faces a roller coaster of emotions

For Naomi Pickersgill, living with metastatic breast cancer and being confronted with her own mortality has been a “roller coaster of emotions.”

Living with mbc and learning to celebrate each day

Adriana Capozzi of Bradford, Ontario, was diagnosed in October 2014 with HER2-positive, Stage III breast cancer.  She received four months of chemotherapy and one year of Herceptin, along with a bilateral mastectomy and 25 rounds of radiation.

If I Could Save Time in a Bottle

I have never been a fan of roller coasters, too much up and down, made me feel sick.  Ironically, my life seems to have become a gigantic roller coaster ride! 

Metastatic breast cancer’s silver lining

For Shelley Scott of Winnipeg, a metastatic breast cancer diagnosis in November 2016 had a silver lining.

“It helped me appreciate the moments of my life rather than worrying about what might be, which is kind of a gift,” she says.

She tells the story of two coworkers she knew who planned a big trip for the time when they both were retired.  They never made the trip because one of them died.

Metastatic breast cancer has made her a fighter

In August 2016, Erin Richard of Sydney, Nova Scotia was diagnosed with triple negative metastatic breast cancer.  She was only 39 years old.

In search of timely and equitable access to drugs

I learned about “timely and equitable access” to oncology drugs at the Canadian Breast Cancer Network's metastatic breast cancer advocacy training in 2013. I was the first in Canada prescribed Perjeta, days after Health Canada approved the drug. My oncologist shared exciting trial results about dual blockade (using two drugs simultaneously against breast cancer). The trastuzumab emtansine (TDM-1) trial had closed days earlier. Another combo was available but it was “back pocket.” The caveat was that it wasn’t funded but my extended health insurance benefits agreed to pay. On route to my first infusion, I penned a sign: BELIEVE. We did. I had dozens of liver and lymph mets and my liver was failing. After two rounds, I had normal liver enzymes and after three, normal tumour markers.