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The Voice of People With Breast Cancer

Education

Our Voices Blog


Tag : advocacy

What Happens if a Life or Health Insurance Company Denies Your Claim?

A breast cancer diagnosis comes with so many fears and challenges. The last thing you need on your mind is the worry about whether your insurance claim will be approved or denied. Appealing a denied claim can add an additional burden to an already difficult time. Some people don’t even realize that are able to appeal their denied insurance claims. But how do you do it?

Getting a Second Opinion in our Public Health System

When we hear stories about people’s experiences receiving a diagnosis like breast cancer, we often hear the empowering message to trust your gut and get a second opinion if the answers aren’t sitting well with you. These messages, while meant to be inspiring, can often feel impractical. In other countries, like the US, getting second opinions may be fairly straightforward, but in Canada, second opinions may be a bit trickier to come by.  

Joycelyn's Cancer Journey

Joycelyn Merkley, from Shelburne, Ontario, describes herself as: a girlfriend, mother, grandmother, sister, and daughter. She has lived 53 years embracing these roles when in July of 2021 she was thrown into another role: breast cancer patient.

Closing the Breast Cancer Care Gap

This World Cancer Day, the focus is on how to ‘Close the Care Gap’. It is a call for everyone to not only become aware of the inequities that exist in cancer care, but to get actively involved in addressing and reducing such inequities. These inequities can be due to systemic and social barriers, as well as general access to care. While such gaps exist, they can be reduced and eventually eliminated. Below, we outline what CBCN is doing to close the breast cancer care gap and what you can do too.

Tamoxifen’s One Perk: Not Having My Period

The only thing I miss about Tamoxifen is not getting my period.

CBCN-in-Action: 2021 in Review

The Canadian Breast Cancer Network exists to ensure the best quality of life for all Canadians diagnosed with breast cancer. We do this by voicing the views and concerns of breast cancer patients through education and advocacy activities. We also work to ensure that what we undertake is: patient-centered, credible and promotes equity.

COVID-19 and Breast Cancer: Patient Voices, Expert Knowledge

Our latest digital magazine COVID-19 and Breast Cancer: Patient Voices, Expert Knowledge approaches the ongoing COVID-19 pandemic from the perspective of breast cancer patients and provides credible information for breast cancer patients from healthcare professionals and experts.

CBCN's Digital Storytelling and Advocacy Toolkit: Using Personal Storytelling for Advocacy

While there have been many advances made in the diagnosing, treatment and management of breast cancer, individuals diagnosed with or living with breast cancer still face issues that are not yet being addressed by the organizations and government bodies that serve them. In addition to this, the public is generally not aware of the day-to-day impacts of a breast cancer diagnosis on individuals and their families.

Self-Advocacy Tips: For Patients, From Patients

Last year, we wrote a blogpost on the importance of advocating for yourself as someone with breast cancer. We also shared tips on how to go about becoming an advocate and being a part of your healthcare team. While the information shared is valuable and reflects situations you may find yourself in, we believe that the best way to learn is to hear from people who have been there already.

This World Cancer Day, Commit to Act

February 4th is recognized as World Cancer Day, a global initiative led by the Union for International Cancer Control (UICC) that is focused on awareness, education and action. The goal of this day is to create a world where death from cancer is preventable and where everyone can access proper care and life-saving treatment.

Three Things to Know Before Your Lumpectomy

I’m a talker. I like to communicate and sometimes, okay often, I’m an over-sharer. I need to know what’s going on and why and in my version of yin and yang, I believe that because I’m an open book everyone else will be too. Except, not so much.

CBCN In Action in 2020: Our Year in Review

As the year slowly winds down, we look back on some of the many activities and projects that CBCN has participated in, developed, or updated. These efforts reflect our ongoing commitment to that ensure that the voice and perspectives of breast cancer patients are reflected in the work that we do.

Making the Right Choice

Recently, after spending eight hours with abdominal pain so intense I was doubled over, I conceded to my sister Liz, who insisted a trip to the hospital was necessary and crawled downstairs, ordered an Uber, pulled a patterned facemask over my nose and mouth and went. Twelve hours, three hits of morphine and one magnetic resonance imaging (MRI) scan of my lower abdominal organs later, the emergency room doctor told me a lesion on the right side of my liver was the culprit. Based on the scans I’d had taken of my major organs prior to my breast cancer surgery, the lesion was new and potentially the result of the original tumor and/or the treatment I’d received post-operation. An ultrasound followed, revealing the lesion’s 5cm length by 5cm depth by 5cm width. A second MRI has been scheduled.

Why It’s Important to Be Your Own Advocate

The Merriam-Webster dictionary defines ‘advocate’ as a verb that means “to support or argue for”. ‘Self-advocacy is defined as “the action of representing oneself or one's views or interests”. While the word, advocate might make us think of protests or political signs, that is not always the case. As someone with a breast cancer diagnosis, self-advocacy and being an advocate simply means being a part of your health care team. It means knowing yourself and speaking up for yourself to make sure that your cancer care needs are met. Self-advocacy is part of participatory medicine where “patients are actively working alongside their physicians to choose the best course of cancer treatment.”

Life’s Journey

I would have never thought that I would be telling my story to a large group of people but today I consider it an honour.

Retaining control of your medical record, remaining hopeful and persevering

I am a 43-year-old mother of two amazing children, I have been in love with my wonderful Martin for 20 years now and I am a research professional in the health sector. Until August 2018, I was considered a breast cancer survivor. My cancer had been treated in the best way possible. My son was not yet one year old at the time (in 2012). I went through chemotherapy, radiotherapy, hormone therapy, a mastectomy and, finally, a breast reconstruction.

Taking Action this World Cancer Day

Every year on February 4th, World Cancer Day, we get the opportunity to reflect on the work we’re doing to help reduce the impact of cancer. World Cancer Day, led by the Union for International Cancer Control (UICC), has an action packed slogan: I Am and I Will. They’ve developed a set of key issues that affects us all. Here’s how CBCN is working to reduce the affects of cancer for Canadians based on these key issues:

Here’s how we’re helping breast cancer patients through your donations

Giving Tuesday is coming up on November 27th and we wanted to take this opportunity to highlight some of the amazing work Canadians have done to support the Canadian Breast Cancer Network. The Annual Pink Ribbons Project Gala hosted by the Full Circle Foundation for Wellness is a perfect example of community involvement shaping CBCN’s valuable resources.

The Power of We

Together we can accomplish great things! It’s always amazing to watch how individuals coming together as one united voice can truly make a difference in the lives of others.

Wanna know where your money goes?

This holiday season consider adding CBCN to your list for charitable giving! Here’s what you’ll be supporting.